Thursday, June 25, 2009

I have added the CF button on the top right. Just click on that to make a donation to the Cystic Fibrosis Foundation!!GOD IS GOOD!!!! Just a quick update on trial info. Capri had to be able to do two things to get into the trial one was get off her inhaled saline and be OK without it, she has been off a week, #2 was she had to be able to do pulmonary function tests which she has never been able to do, we set it up with her CF doc that she would come in and practice PFT's, today was her 1st practice and she did it on her 1st try!She has done these for close to two years and could not get it down. It is a miracle that she got it today and she did it without practice. The first blow she blew a 93% and then blew the same on the next two blows!!!!! CONSISTENT!!!! The next fundraiser I am doing is give BREATHE FOR A BUCK!! I will give more info out later. I am asking everyone to help fund the cure with just a $1.00 donation!!!Your $1 gets us one step closer to the cure!!It is overwhelming to see miracles happen in the last week that has reassured us that this is what we are supposed to be doing. I feel and see God like I never have before, let me just say that I am thankful for Cystic Fibrosis and you will never be the same after you research this disease and see a glimpse of the people that live with it. There is an undeniable strength and miraculous spirit inside all of those with Cystic Fibrosis. Like I say it is such an ugly horrific disease but those that suffer from CF posses the most beautiful qualities anyone in this world could have. CF is a silent killer and I am asking you to please help spread the word about CF and help fund the cure. I ask you to take 10 minutes out of your week and look on YouTube or google cf blogs and read or view one Cystic Fibrosis story. It will show you a whole different side to a disease few people even know about. It will bless you to see the strength and spirit of someone that suffers from Cystic Fibrosis. IT WILL INSPIRE YOU to help show those with CF that this world cares, that they do matter, and that we will take steps to help them have the simple gift of breath!!!! We take so much for granted in this life, we don't even realize until we see what others endure and they endure it with a smile!! Our next fundraiser fasting Fridays falls two weeks before we may leave for part 1 of the trial. Can anyone say GODS PERFECT TIMING, we will need prayer more than ever. But please pray for all those with CF and those who have lost someone to CF. Some specific names I request you pray for are the Skaggs,Alli, Missy, and Lou! God Bless Each of you.

Monday, June 8, 2009

AS SEEN ON NEWS 9: PURCHASE RAFFLE TICKETS FOR FORD F-150, FLAT SCREEN T.V. OR BLUE RAY PLAYER TO SUPPORT CYSTIC FIBROSIS FOUNDATION

TO BUY RAFFLE TICKETS FOR THE FORD F-150, 46 Inch 1080 HD Flat Panel TV, or SONY BLUE RAY PLAYER YOU MAY EITHER EMAIL ME AT capriscrusaders@yahoo.com and let me know how many tickets and for what items and I can send you the address to mail a check made out to the Cystic Fibrosis Foundation, or you can pay for them directly on the CF website by clicking on this link http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=5774&idUser=22179 and then click on the button that says click to donate and make the donation amount to cover the tickets you want to purchase and it lets you leave a comment when you make the donation and write donation for raffle tickets and either way you would prefer to donate be sure and email me and let me know your name, address, and phone number to fill out the tickets and where to send the ticket stubs and a copy of the ticket I filled out for you. TRUCK AND BLUE RAY PLAYER are $2.00 a ticket and the FLAT SCREEN TV are $5.00 a ticket. DRAWING FOR TRUCK IS ON AUGUST 9th at the Del City Ball Park, and drawing for TV and Blue Ray is Sept. 15th. The TV is donated by Oklahoma Office Systems and they will draw for that at their office, and the brand new Blue Ray is donated by my husband and I and we will have Amy Smith pull the winning ticket on the same day as the TV. Thank you for your support in helping fund a cure for Capri and ALL others living with Cystic Fibrosis!!!Nicole Faulk

WAY TO GO TEAM CF, CAPRI FAULK FIGHTING CYSTIC FIBROSIS HOPING FOR CURE FOUND!

FIRST OF ALL THANK YOU SO MUCH TO OKLAHOMA OFFICE SYSTEMS FOR BEING OUR CORPORATE SPONSOR AND TO AMY SMITH FOR HER MOTIVATION AND ORGANIZATION OF FUNDRAISING EVENTS!!! THE GRAND TOTAL RAISED SO FAR? OVER $15,000 DOLLARS, WE CAN DO IT!!! THANKS TO EACH AND EVERY ONE OF YOU FOR STEPPING UP AND JOINING ME IN THE RACE FOR MY DAUGHTER'S LIFE. BE SURE AND CHECK OUT THE LINKS ON THE RIGHT SIDE OF THIS PAGE TO RECENT STORIES ABOUT CAPRI ON NEWS 9.

NEXT FUNDRAISER, FASTING FRIDAYS!! ALSO JOIN US ON FACEBOOK our group is CAPRI'S CRUSADER'S

We are asking Crusaders to sacrifice (1) meal each Friday for the next six months and devote that time instead to prayer, meditation, volunteering, etc. In addition we hope that participants will set the money from the saved meal aside and contribute it to the Cystic Fibrosis foundation. You can do this by accessing the link thru our blog or contacting Nicole or Amy who will collect your money. Our hope is that everyone will contribute on a monthly basis so that we can track our success! If everyone in our current group contributes $20 ($5 each friday) a month from now until December we will have raised over $10,000!!! AMAZING!This event is not meant to make anyone uncomfortable. If you do not wish to fast or contribute money sending a simple thought or prayer our way is appreciated. Fasting Fridays will last for six months-from July 1 until December 18th. Basically by sacrificing approximately 20 meals and 20-30 hours of your time over the next six months you will be making a HUGE difference in Capri's life!Please let us know if you plan to participate so that we may add you to our team roster on our CF homepage. This does not obligate you in anyway but simply allows us to see how many of our friends are participating in this event. Plus we would love for you to share your stories or personal experiences involving the fast. Who's skipping breakfast? Groups getting together to pray at lunchtime? A prayer we can say for you? We want to hear it all! Thanks to everyone and God

Bless~Nicole & Amy

Monday, June 1, 2009

NEED ITEMS DONATED FOR OUR GARAGE SALE, RAFFLE TICKETS FOR SALE

Hey guys, if anyone is doing some spring cleaning we need stuff donated for us to sell at our CF garage sale. It is this weekend and we could come and pick up your stuff or you can drop it off to us at the garage sale. Also we would love for anyone who can to come out and volunteer some of your time to help us run the garage sale. Email me if you can help out in any way. Also just to let everyone know we are selling raffle tickets for a Ford-F150 and a sony blue ray player for $2.00 a ticket and Oklahoma Office Systems has purchased a 46inch plasma TV to raffle for Capri's Crusaders and those are $5.00 a ticket. We are drawing the winner in August for the truck and Sept. for the blue ray and TV. Email me if you are interested in buying raffle tickets and I can mail you the raffle tickets and you can either send a check or pay for them on our cfhomepage at http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwalkid=5774&idUser=22179 by clicking on the click to donate button. Donate the amount to cover the tickets you want and it lets you leave a comment so put that your donation is for X # of raffle ticktes. Also if you want to help me sell raffle tickets I can mail you some tickets and you can sell them to your family, friends, and co-workers. A quick update on Capri, the trial for the new medication starts this month. Sign up for her age group has not been opened yet, but should be within days. We are going to have to move for a year if she is accepted because Oklahoma is not a trial sight, but we are willing to do whatever it takes. CF is showing its ugly head in Capri's body. It has been hard to see in just the last few months how much the disease has taken over my little girl. We are truly in a race with the clock for her life. Please keep her and our family in your prayers, we need them now more than ever!! God Bless each and everyone of you!!!

Capri’s Crusaders will be hosting a
Cystic Fibrosis Fundraiser!!!
Yard Sale in the
Autumn Ridge
Addition on Covell (between Coltrane & Bryant.)
Saturday June 6th
8am-3pm
Lots of goodies-clothes, furniture, decorative items, electronics, children's items, etc…
All proceeds will go directly to the CF foundation.
**There is a neighborhood sale going on this day so don’t miss out!!!

VIEW THE PRESIDENT OF THE CF FOUNDATION READING THE EMAIL I WROTE