Wednesday, December 9, 2009
It has been such a long time since I have updated this blog. We are living in TN, we moved here in August, awaiting the start of the FDA trial for VX-770. Capri has already participated in Part One of the trial and she got one dose of VX-770. We love TN and the doctors here are amazing. A quick update on fundraising. We have about 3 wks left to meet our goal of $200,000. Amazingly we might have met our goal. The Foundation is waiting for a check currently from an amazing man. A amazing women joined us in the fight for Capri and all those with CF and she reached out to her boss and he has made a large contribution to the Foundation. It blows me away the impact just one person can have on the fate of thousands of people's lives. We are still waiting to see the amount donated and the wonderful thing is that whatever he donated will be matched by an oil and gas company in TX. So currently because of the work and prayers and money of every person who has gotten involved and joined me in the fight for my child's life my goal may not only be met but blown out of the water. That is truly a miracle in this economic time. THANK YOU TO EACH AND EVERYONE WHO HAS MADE THIS MIRACLE POSSIBLE!!!